Management of incidentally diagnosed pineal cysts in children – a UK Survey of Practice
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1.  Do you have a protocol or standard guidance for follow-up imaging of pineal cysts? *
2.  Are there patients for whom you would recommend no follow-up imaging? *
3.  Do you follow patients up based on diameter of cyst at presentation?
Never
Sometimes
Always
<5mm
5-9mm
10-15mm
>15mm
4.  Do you use specific size threshold different from the above
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4a.  If yes, what is the threshold?
5.  Do you use any measurements different from maximum diameter  (e.g. area/length/ width / height)? *
5a.  If yes, which?
6.  Do you follow-up based on other radiological appearances?
never
Sometimes
Always
Non-simple cyst
Nodular enhancement
Diffusion restriction
Haemorrhage
Effacement of cerebral aqueduct
7.  What are the most useful MRI sequences in the assessment of pineal cysts *
Never
Sometimes
Always
T1 weighted
T2 weighted
FLAIR
Heavily weighted T2 (CISS/FIESTA)
Diffusion weighted (DWI)
T1 post contrast
8.  Do you perform tumour markers (AFP/HCG) in cases of incidentally diagnosed pineal cysts? *
9.  Who is responsible for follow-up?
Primary
Secondary
Neurosurgery
Oncology
Endocrinology
Other
10.  When do you get your first follow-up scan? *
3
6
9
12
>12
Months
11.  What are your criteria for biopsy? *
Required
12.  Have you had any patients with a pineal cyst who on follow-up progressed to surgery or biopsy? *
12a.  If any of these were found to have a pineal region tumour, what was the histological diagnosis?
Would you be happy to be contacted for further information about your practice including histological diagnosis on patients who required biopsy or surgery *
Any additional comments?
Please let us know which centre you work in. *
Please let us know your job title. *
Please let us know your name (optional)
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